Biology of Blood and Marrow Transplantation
Volume 16, Issue 2 , Pages 147-156 , February 2010

The National Marrow Donor Program's Symposium on Patient Advocacy in Cellular Transplantation Therapy: Addressing Barriers to Hematopoietic Cell Transplantation

  • Elizabeth A. Murphy

      Affiliations

    • National Marrow Donor Program, Minneapolis, Minnesota
    • Corresponding Author InformationCorrespondence and reprint requests: Elizabeth A. Murphy, EdD, RN, National Marrow Donor Program, Office of Patient Advocacy, 3001 Broadway NE, Suite 100, Minneapolis, MN 55413.
  • ,
  • Stacy Stickney Ferguson

      Affiliations

    • National Marrow Donor Program, Minneapolis, Minnesota
  • ,
  • Nancy Atieno Omondi

      Affiliations

    • National Marrow Donor Program, Minneapolis, Minnesota
  • ,
  • Lisa C. Getzendaner

      Affiliations

    • Fred Hutchinson Cancer Research Center, Seattle, Washington
  • ,
  • James L. Gajewski

      Affiliations

    • Oregon Health and Science University, Portland, Oregon
  • ,
  • Gary A. Goldstein

      Affiliations

    • Stanford Hospital and Clinics, Stanford, California
  • ,
  • John R. Wingard

      Affiliations

    • University of Florida, Gainesville, Florida
  • ,
  • J. Douglas Rizzo

      Affiliations

    • Center for International Blood and Marrow Transplant Research, Milwaukee, Wisconsin
    • Medical College of Wisconsin, Milwaukee, Wisconsin
  • ,
  • Navneet S. Mahjail

      Affiliations

    • Center for International Blood and Marrow Transplant Research, Minneapolis, Minnesota
    • University of Minnesota, Minneapolis, Minnesota

Received 13 May 2009 ,Accepted 10 August 2009.

References 

  1. Ballen KK, King RJ, Chitphakdithai P, et al. The National Marrow Donor Program: 20 years of unrelated donor hematopoietic cell transplantation. Biol Blood Marrow Transplant. 2008;14:2–7
  2. Karanes C, Nelson GO, Chitphakdithai P, et al. Twenty years of unrelated donor hematopoietic cell transplantation for adult recipients facilitated by the National Marrow Donor Program. Biol Blood Marrow Transplant. 2008;14:8–15
  3. Lee SJ, Klein J, Haagenson M, et al. High-resolution donor-recipient HLA matching contributes to the success of unrelated donor marrow transplantation. Blood. 2007;110:4576–4583
  4. MacMillan ML, Davies SM, Nelson GO, et al. Twenty years of unrelated donor bone marrow transplantation for pediatric acute leukemia facilitated by the National Marrow Donor Program. Biol Blood Marrow Transplant. 2008;14:16–22
  5. Pasquini M, Wang Z. CIBMTR summary slides 2007 (part 2). CIBMTR Newslett. 2008;14:5–13
  6. American Society of Blood and Marrow Transplantation. Guidelines on recommended timing for transplant consultation, 2008. Available from: http://www.asbmt.org/policystat/policy.html. Accessed May 5, 2009.
  7. National Marrow Donor Program. Questions to ask your doctor about treatment options. Available from: http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Discuss_Opt_w_Dr/PDFs/questions_about_treatment_options.pdf. Accessed May 5, 2009.
  8. Myaskovsky L, Switzer GE, Dew MA, et al. The association of donor center characteristics with attrition from the National Marrow Donor Registry. Transplantation. 2004;77:874–880
  9. Switzer GE, Dew MA, Goycoolea JM, et al. Attrition of potential bone marrow donors at two key decision points leading to donation. Transplantation. 2004;77:1529–1534
  10. Switzer GE, Myaskovsky L, Goycoolea JM, et al. Factors associated with ambivalence about bone marrow donation among newly recruited unrelated potential donors. Transplantation. 2003;75:1517–1523
  11. Confer DL. The National Marrow Donor Program: meeting the needs of the medically underserved. Cancer. 2001;91:274–278
  12. Kollman C, Weis T, Switzer GE, et al. Non-HLA barriers to unrelated donor stem cell transplantation. Bone Marrow Transplant. 2001;27:581–587
  13. Frick E, Rieg-Appleson C, Tyroller M, et al. Social support, affectivity, and the quality of life of patients and their support-givers prior to stem cell transplantation. J Psychosoc Oncol. 2005;23:15–34
  14. Meehan KR, Fitzmaurice T, Root L, et al. The financial requirements and time commitments of caregivers for autologous stem cell transplant recipients. J Support Oncol. 2006;4:187–190
  15. Caregivers' guide for bone marrow/stem cell transplant. nbmtLINK 2007. Available from: https://nbmtlink.readyhosting.com/resources_support/cg/index.htm. Accessed May 5, 2009.
  16. Andrykowski MA, Bishop MM, Hahn EA, et al. Long-term health-related quality of life, growth, and spiritual well-being after hematopoietic stem cell transplantation. J Clin Oncol. 2005;23:599–608
  17. Bishop MM, Beaumont JL, Hahn EA, et al. Late effects of cancer and hematopoietic stem cell transplantation on spouses or partners compared with survivors and survivor-matched controls. J Clin Oncol. 2007;25:1403–1411
  18. Fife BL, Huster GA, Cornetta KG, et al. Longitudinal study of adaptation to the stress of bone marrow transplantation. J Clin Oncol. 2000;18:1539–1549
  19. Mandelblatt JS, Yabroff KR, Kerner JF. Equitable access to cancer services: a review of barriers to quality care. Cancer. 1999;86:2378–2390
  20. Fiscella K, Franks P, Gold MR, et al. Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care. JAMA. 2000;283:2579–2584
  21. Navarro V. Race or class versus race and class: mortality differentials in the United States. Lancet. 1990;336:1238–1240
  22. Lishner DM, Richardson M, Levine P, et al. Access to primary health care among persons with disabilities in rural areas: a summary of the literature. J Rural Health. 1996;12:45–53

 Financial disclosure: See Acknowledgments on page 154.

PII: S1083-8791(09)00370-X

doi: 10.1016/j.bbmt.2009.08.004

Biology of Blood and Marrow Transplantation
Volume 16, Issue 2 , Pages 147-156 , February 2010